Saturday, December 27, 2014
Because I got high and Christmas spaghetti in Mexico
Thursday, December 25, 2014
Liquid embrace.
Wednesday, December 24, 2014
Paralysis
And I don't know if I hate men. Or if I love them. I felt crazy for a while, but now I just I just feel tired. Men have taken too much and I'm tired of gaining strength over and over again. Every time I let go, something makes it all reattach itself. Maybe the ocean will finally take it away.
Monday, December 22, 2014
Pinball Wizard
So, I'm alone in Mexico. Just me. No kids. No husband. No family. Nobody. Me, my thoughts, and the quiet are all awkwardly sitting here together. I will be here a total of 18 days alone. I chose this. I chose it because I need it. I know I need it. It occurred to me when I was contemplating staying alone in a foreign country for a measly 2 1/2 weeks that I was terrified of it. I have never been alone for 18 days. Not at home. Not in another country. Not anywhere. I have always had kids or husbands or boyfriends or family around. Always. I went straight from my parent's house to a husband's house. Since then, I've bounced all around like a pinball bouncing off people like bumpers. When I would fall into the drain, I'd just bounce like the steel ball again into more bumpers. I've never stopped the game. I've always had people around. But, I chose to be alone for 2 1/2 weeks. I almost backed out. And facing my first full day alone here, I have had the urge more than once to hop a plane and go back to my people. I feel a pull toward my sons and I want to go to them. Just to hear them around me. Just to know they are there. But I need this. I need to be alone.
A friend told me to be careful. That being so alone could harm me. That I needed people to bounce off of right now. I disagreed. I have to be alone with just me, my thoughts, and the quiet. I have to sit here like this until it is no longer awkward. I have to sit here like this until it feels ok. I have been bouncing around for too long and I need to leave the ball in the machine and take a break. I have lived this life that seems impossible to explain. I have felt victimized far more than I feel is possible. Therapy, meetings, books, meditation, reflection, conversation; it's all been helpful but I am in a pinball machine under glass bouncing around the same obstacles over and over again. They have different names. Different faces. Different environments. Same obstacles. And it has to stop. I'm so tired.
So I am spending 18 days alone in Mexico. I don't know what I will do with it. I know I will not be drinking every day this time. I know I am not here to escape reality this time. I am here to soak in it. I am not here this time to find as much noise as possible like last time. I am here this time to quiet the noise and see what is under it. I need to find me. I need to contemplate the pinball board. I need to review the puzzle. It's not the first time I've done that, not by any means. I've contemplated more than most. But I haven't done it alone. Not truly alone. Not without the distraction of people. I hate being alone. And I need to figure out why. I need to face it down and figure out why my own company has always been my least favorite. I know, deep down, why. I know I don't want to face myself. To review, once again, my own mistakes and responsibilities in my story. I don't want to admit that I'm not as healed as I thought I was. I don't want to admit that I did not release myself from the pattern when I thought I had. I don't want to decide what I really want and how to get there. I don't want to talk to myself. I don't want to go through the work of it. But, I want the peace at the end. I want the calm, quiet, decisive end result. And I'll only get that, this time, alone. I know that the only thing I can and will talk to about anything meaningful is the ocean. And I can't run this time. I can't drug it or drown it or fuck it or laugh it away. I must feel it. I must.
So, here I am. Alone in Mexico. Contemplating the best way to feel it. Should I write about it? That always seems to help me the most. Writing it all down. Telling the story. Should I meditate? It calms me down and makes me empty. It is designed to do so. But will it be enough to get the answers I need. Should I do it with discipline and a set plan or should I let the tide take me as it decides to? Should I stop over thinking it or start over thinking it? I don't know. I'm just starting. The first thing I wanted to do was write. So I am. But maybe I just want to write to connect. To feel like I'm talking to people. Figurative. Unknown. People. But when I write, I am usually writing to myself. So maybe that is my version of talking to myself. I only share it afterward.
All I know is that I'm tired. And I feel lost. And I need to be alone. So I am. So today I will just congratulate myself on going through with it and not buying the plane ticket back to people. That is enough.
Thursday, December 11, 2014
Things not to say...
I came across this list of replies to Things Not To Say To Someone With RA. It's a decent list, some not yet applicable to me because I'm so early in actual treatment of it. All the same, all of the sarcasm is priceless to me and more than a little appreciated. I am in a sort of rage about my disease right now. I'm heartily stuck in anger. The list I read isn't complete, in my opinion. It's also lacking enough curse words to properly portray the frustration of hearing this shit from people, here are my 5 additions to the list.
For reference, here is the original list: http://rawarrior.com/20-replies-to-things-not-to-say-to-a-rheumatoid-patient/
1. "You just need to smoke some weed."
Hey, listen, I get that weed can be helpful for a lot of things and may even help relieve the pain, anxiety and depression associated. But it is temporary and if we are going to find illegal temporary drugs to get that effect, why not suggest heroin or morphine? Same sentiment in my eyes. I have an auto-immune disease for which there is no cure. A joint isn't going to cure my joints. I will require hardcore meds for the rest of my life to slow down the disease in order to delay becoming disfigured, deformed, and unable to independently function. That will happen eventually anyway. More to the point, I HATE SMOKING WEED. It's not for everyone and I am not looking for an excuse to get a medical marijuana card. Liquor kills the pain too and I actually LIKE liquor. Please stop saying this to me. It makes me want to punch you in the face. Also, fuck you.
2. "The mind is a powerful thing. Maybe you just need to change your thinking/attitude."
Ok, listen, if I could "think" my way out of this pain, I'd have done it a long time ago. On bad days, I feel like I am simultaneously walking on no less than 10 broken bones while someone is sticking knives and/or ice picks in various parts of my body and the other "better off" joints are frozen and cracking and popping like icicles when I move. AND my muscles are sore from the extra effort they are making trying to hold me up despite all that. AAAAND I have a low grade fever and that's just pissing my body off. AAAAND I generally feel like I ran a marathon with the flu. I am probably pumped full of all the meds available to me, covered in heating pads, already took 3 hot whirlpool baths, and slathered myself in whatever icy-hot-esque oils or creams I can find to distract me from the pain for a few precious minutes. When you tell me to think my way out of that and adjust my attitude, I sincerely wish the pain I'm in on you so you can try to "adjust your attitude" to get rid of it. I want to punch you in the face. Also, fuck you.
3. "Don't do that! You're going to hurt yourself. Let me do it for you."
This one is tricky for me. There are days when my pain level is baseline. Although I am literally never pain free, the miracle of this disease is that your tolerance for pain becomes superman level. So, baseline is a good day/week/month where the pain I described above isnt there and I am just in a regular amount of pain. The best way for me to try to describe the freedom of baseline is to compare it to that sort of euphoric, king of the world feeling you get when you finally feel better after having a bad flu. Your body did not, in reality, revert back to it's teenage state and you're ready to go run 5 miles but in comparison, you feel like you are experiencing the most healthy day of your life. If someone told you to slow it down or go back to bed, you'd think they were nuts. You feel great!
That's how I feel at baseline, especially after a really bad flare up. So, let me do what I want! If I want to go on a hike and carry a 20 lb backpack, carry my own tank and dive to 100 feet, help with some sort of physical labor, DANCE all night, WHATEVER... Please don't tell me not to "for my own good" or to "save me from myself!" Facing the fact that I will eventually lose my ability to do these things at all is the hardest thing I've ever had to deal with (and if you know anything about my life thus far, you know that's a significant statement). If it causes me to spend the next day or week in bed, that's my choice. I promise that my body will tell me when to stop. And I promise you it is hashtag worthit to me to climb that mountain, dig that hole, dive that depth because I STILL CAN and that ticking clock in my head is constantly reminding me of the undetermined "later" when I CAN'T. Yeah. I'm stubborn. Thank God-Or-Whoever for that. Thank God-Or-Whoever I am not giving up until I HAVE to.
When you discourage me from doing these things because it may knock me down tomorrow, I feel the love. I feel the care and concern and I do appreciate that part of it. But I still want to punch you in the face. Also, I love you. Thank you, truly, but fuck you.
4. "I am selling this supplement/shake/pill/oil/cream/drink/MLM bullshit stuff and you should try it because it will REALLY HELP! Read these testimonials."
Muderous Rage. Face punch. Fuck you. Twice.
*Please distribute that up through all the tiers so everyone can get their share.
5. "I understand."
No. You don't. Punch. Fuck you.
Exception: Some people do understand. They have some something that aids them in being able to understand the physical, emotional, spiritual, existential thing I am going through and how it all changes day to day yet is always present. Some people get it. And trust me when I say that I know the difference. If you are one of those people, this doesn't apply to you.
I want to say that I understand that almost every thing that I listed here is said to me with good intent. Most are said by people who truly want to help or at least provide me some comfort. The words are meant to elicit a positive response and eminate love in some form. They don't deserve to be punched (Except those guilty of #4, they deserve to be punched) or have an f bomb thrown at their face. It's unjustified anger; misplaced rage. The real f bombs and face punches are at the disease. But, all the same, stop saying this shit to me. It doesn't help like you want it to. Much love all the same.
Saturday, December 6, 2014
Exit Here
I believe in signs. Messages. Divine intervention. Fate. The order of things. A predestined road. Whatever you want to call it. I choose the less eloquent label; signs. I think everything leads you where you are supposed to be. Lately, the reflective letters in my headlights seem to be directing me to toward writing an actual bone-a-fide full length book. I have one in full swing. Ive been writing it for years. But it, unfortunately, is too true. Chapter 1 would destroy enough illusions and piss off just the right amount of "important" people in my life to disrupt my current highly relative life stability. It's simply too true. I'll have to go the way of Dickenson and have it discovered (hopefully as complete as my life will be) after I've gone permanently into a hermit shell and moved on to the next life. It's just too true.
So, what then? I'm no good at fiction. What in the world is the use of such an interesting, often tragic yet somehow inspiring, nothing held back, mistake and recovery riddled, rich, colorful life if I have to create fiction to put on paper.
And then there's this thought: My life has been a series of choices I made consciously or subconsciously that led to a lot of pain, anger, trauma, turmoil. Yes, I recovered time and again and did that inspirational poster thing where I turned it all into wisdom or added its internal consequences to my store of personality quirks that create a stew that most people I encounter tend to have a taste for. What didn't kill me made me quite a bit cooler and all that. But I've had my share of things that tried to kill me. Literally and figuratively.
So how would the truth come across? I'd tend to vote that I'd come across as self-absorbed whining victim. But maybe it'd be fearless warrior. Will I look like a heroine or a self-pitying sniveling bitch? Would I be able to include the positives among the mess of mistakes? Would I be able to truly portray how responsible I feel for making the desicions that led me through a maze of abuse, betrayal, hate, unraveling. Would I be able to explain the monster I became sometimes and the mouse I became other times. Would everything I am make more sense to everyone around me or would it turn my life upside down to let ALL of the bony dust covered things out of my impressively sized closet and collect them under one dust jacket? I vote that my life would flip. But my life has, thus far, been an Olympic qualifying gymnast. Would one more flip matter?
And another thought occurs to me. How do I go back and tell these stories, my seven or so of nine lives, in short form. How do you summarize a culmination of microbe to Pacific events and really get to the heart of it. I guess that's all left to the craft of the pen. The brush must create the total portrait on one canvas.
So, maybe I'm left with fiction. Maybe.
Monday, December 1, 2014
Runaway Mine Train; I don't even know if I am married.
Still
Here I am again. Frozen in a time that's both familiar and new. The merry go round has come around again and I am captured in another ...
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Dear You Know Who You Are, I hear you. You may not think I hear you, but I hear you. You may think that your words are harmless. You may th...
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It never occurred to me to want be anything but what I was until I was an adult and people started telling me I needed to be something else...
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WARNING. This post is entirely made of stream of consciousness notes I took for the last 9 hours. It's not edited. There's the f wor...